The Fibrous Dysplasia Foundation seeks to foster support and connection between patients with fibrous dysplasia, McCune-Albright syndrome and cherubism. It benefits many patients to explore online and in-person support communities.
With the exception of the Fibrous Dysplasia Foundation Facebook page and Twitter, the following communities are independent from the Fibrous Dysplasia Foundation, and we are not responsible for their content.
Fibrous Dysplasia Support Online (FDSOL) is dedicated to providing answers, support, and hope for those with Fibrous Dysplasia and for their families. This is a Google group moderated by Jenny (Heinz) Kyle. Click the link and register to join. http://groups.google.com/group/fdsoldailyemail?lnk=
There is also a patient-moderated Facebook group for FD/MAS patients. It is not controlled by the Fibrous Dysplasia Foundation.
Related organizations may also create online communities; Don’t forget to check them out!