The work of the Fibrous Dysplasia Foundation is made possible by the volunteer efforts of many people and financial and in-kind contributions from many sources. We thank the individuals and corporations below for their generosity.
The Constellation Award was created by the Fibrous Dysplasia Foundation to honor the stars who have made and who continue to make great contributions to enable the FD Foundation to fulfill its mission. The Foundation exists to provide information, advocacy and support to patients, medical professionals and the general public, and promote research for diagnosis, treatment and a cure for Fibrous Dysplasia (FD), McCune-Albright Syndrome (MAS), cherubism, and related diseases.
2006 – Dr. Michael T. Collins, NIDCR Craniofacial and Skeletal Diseases Branch, and head of was the Skeletal Clinical Studies Unit, began working in NIDCR in 1996 and, together with other members of the branch, established a series of clinical protocols for the study and treatment of fibrous dysplasia (FD) and the McCune-Albright Syndrome (MAS). These protocols were the first of their kind, not only for NIDCR, but also for the NIH Clinical Center. Dr. Collins past and present research not only provides basic understanding of the pathophysiology of these diseases, but generates evidence-based guidelines for the evaluation and treatment of patients with these conditions. Dr. Collins has generously served as a nonvoting member of the FD Foundation Board of Directors since its incorporation. Dr. Collins was selected as the first recipient of the Constellation Award from the Fibrous Dysplasia Foundation in recognition of the contributions he made to the care and well-being of people with FD and MAS.
2008 – Charlene Waldman, Executive Director of the Paget Foundation, has openly shared her expertise in operating a medically focused non-profit organization and has many times drawn the Fibrous Dysplasia Foundation and other smaller organizations into larger efforts, such as the Rare Bone Coalition of the Bone and Joint Decade. She is dedicated to patient advocacy and for this we are eternally grateful.
2008 – Fred Singer, Director of the Endocrine/Bone Disease Program at the John Wayne Cancer Institute in Santa Monica, CA and clinical professor of medicine at the Geffen School of Medicine at UCLA has been a supporter of the FD Foundation since its beginning. He has generously served on the board of directors, fielded many requests for information, presented research to patients and was instrumental in securing a site for the 2006 Patient-Family Meetings in Santa Monica. Fred is truly dedicated to improving patient’s access to care and for this we honor him.
2008 – OrthoPediatrics, Corp. of Warsaw, Indiana, founded by Nick Deeter has partnered with the Fibrous Dysplasia Foundation to understand the special orthorpedic needs of children with Fibrous Dysplasia. OrthoPediatrics has been very generous in sharing the contacts they have made due to their leadership’s extensive orthopedics background in order to help further the mission of the FD Foundation and provided extensive assistance with rebuilding the FD Foundation website.
DONOR HALL OF FAME
EXTRAORDINARY DONORS – providing $5000+ in direct finding or in-kind support
SUPER DONORS – providing $1000 – $5,000 in direct funding or in-kind support
Bicycle Headquarters, Midland, Michigan
Bill and Carol Rowe
Bone and Joint Decade
Covenant Health Care, Midland, Michigan
John Wayne Cancer Center, Santa Monica CA
Midland Area Community Foundation
Riley Children’s Hospital, Indianapolis, IN
Runners, Midland, Michigan
SYM Financial Advisors
Thompson Family Foundation of Minnesota
WNEM TV 5
SUBSTANTIAL DONORS – providing $500+ in direct funding or in-kind support
Deloitte Mc Kay Printing
Pizza Sams, Midland, Michigan
We can always use your help!
VOLUNTEER WALL OF HONOR
Over the years, the mission of the Fibrous Dysplasia Foundation has been supported by volunteers who and organizations that do not have a direct connection to individuals affected by the medial conditions the foundation addresses. These volunteers deserve special mention.
Creation of down-loadable Podcasts completed by Pat Foster, Spokane, WA, FD Foundation member.
Conference presenters are all volunteers, many of whom funded all or a significant part of their travel and lodging to make the FD Foundation Conferences possible: Michael T. Collins, Linda A. DiMeglio, Craig Dufresne, Erica Eugster, Edmond FitzGibbon, Eric Imel, Marilyn Kelly, Jeff Kim, Janice Lee, Arabella Leet, Lynn Lindaman, Scott Paul, Pam Robey, Fredrick Singer.
Financial advice and providing a location for the 1st FD Foundation Conference in 2005- Walter Gerasamowicz of NYC.
Fundraisers who hold events or solicit contributions from friends and family through letters are critical to the FD Foundation’s capability to carry out its mission: Johnna Gulluscio, Carly Levin, Charlie Harles, Mary Clements, Jen Coleman and Spitzi Barnicle.
Library contributors who have summarized often difficult medical language into lay terms: Maureen McGuire, Loyola College of Maryland; Mallory Aquila, Loyola College of Maryland.
Original Web design created by Albert Estevez. Years of website support from Steven Jones and Chris Bake.
Prior members of the Board of Directors: In addition to the current members of the Board are many who served previously. We are appreciative of the many ways in which they influenced the FD Foundation: Steve Hobelhenrich, Wendy Daubel, Clay Craig, Amy Arnold, Anne Miller, Lisa Heaton, Walter Gerasimowicz, Renee Caubisens., Geri Chimera, Laura Flynn, Kelly Logan, Paul Dodge, Rhonda Nash, Dale Ingram.
Translation of the brochure into Spanish was completed by Maria Radulovic.