LIVING WITH FD, MAS AND CHERUBISM

You may access a number of public interest articles written by and about individuals living well with FD, MAS and Cherubism. 

Dylan Levine of Paramus, N.J., has polystotic FD and is a world class wheel chair tennis and basket ball player. In 2008, he was interviewed before competing for the U.S. junior team at the 2008 Invacare World Team Cup. Aug 4, 2009 he was featured on FOX News.

Access Getting to Know... Dylan Levine

Boy is US is tennis champ dispite being diagnosed with fibrous dysplasia  (video)

Amanda Bory has MAS and polystotic FD and was a pretty regular teen except that she did a phenomenal amount of volunteer work.  Access Illness Spurs Life of Achieving.

Access Illness Spurs Life of Achieving

Paul Bright, who has pursued a career in the US Air Force, has MAS and FD and writes about growing up with a disfiguring disease. 

http://www.associatedcontent.com/article/64526/living_with_disfigurement_the_disease.html?cat=10

Lucy Gilmore has MAS and polystotic FD and pursued competitive swimming through her college years. Access Swimming Against the Odds.

Access Swimming Against the Odds

Vicky Wright (nee Lucas) has extensive Cherubism in her mandible and maxilla and made a decision not to pursue a surgical treatment. She has been a subject of BBC documentaries and has written eloquently about negotiating a world which has a narrow notion of normal.

http://news.bbc.co.uk/2/hi/uk_news/magazine/3128203.stm

http://www.nhs.uk/live-well/facial-disfigurement/cherubism

FD Foundation Members who have stories to add to this page should

 visit CONTACT US and indicate your willingness to write:  https://www.fibrousdysplasia.org/index.php?page=9