CURRENT FUNDRAISERS
Like all nonprofit organizations the Fibrous Dysplasia Foundation relies on the generosity of donors. Please help, every bit counts!
$20,000 SCIENTIFIC CONFERENCE CAMPAIGN
The FD Foundation is currently helping Dr. Michael Collins, Chief of the Skeletal Clinical Studies Unit of Craniofacial and Skeletal Diseases Branch at the NIH, organize the 1st NIH sponsored scientific conference to develop a consensus on the best current medical and surgical treatment of fibrous dysplasia, to define areas of focus for future research, and to establish parameters for a registry/bio repository. Participants in the meeting include pediatric and adult orthopedic specialists, cranio facial surgery, plastic surgery, endocrinology, and specialists in stem cells and pathology from the US, Israel, Italy, and Taiwan.
This conference is partially funded by the NIDCR and ORDCR units of NIH.
The FD Foundation needs to raise additional funds
· to accommodate more interested scientists and clinicians and
· to ensure that the results are published in open source journals. This is critical, because it will allow all patients and all physicians worldwide to download the publications free of charge.
Here’s what your donations can do:
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$2,000
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pays for the airfare for an Italian biologist investigating a gene therapy for FD
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$1,000
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rents vans to get all 20+ scientists to and from the airport and to an off-site meeting location where they can meet our supporters from Capitol Hill
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$600
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pays for airfare for a US cranio-facial specialist who treats FD and Cherubism
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$200
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provides professional quality audio recording of speakers
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$100
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purchases breakfast for a pediatric orthopedist, an adult orthopedist, two molecular biologists, a geneticist and a plastic surgeon
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$25
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buys sandwiches for a pathologist, a stem cell specialist and a top surgeon from Taiwan
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Please make a DONATION to support the Scientific Conference: https://www.fibrousdysplasia.org/donations.php
THE 2ND ANNUAL TRI-CITY KIDS' TRIATHLON
WILL BE HELD AT DOW HIGH SCHOOL IN MIDLAND.
JULY 17TH, 2010
The Tri-City Kids' Triathlon was created to foster a healthy lifestyle and a sense of accomplishment for kids ages 6-15. Each triathlete will swim, bike, and run to complete the competition. NO EXPERIENCE IS NECESSARY. This is a fantastic opportunity for your child to participate in an enjoyable, low-key athletic event that emphasizes health, self-esteem, self-confidence and fun, in a safe, family-friendly environment. Proceeds from the race will benefit the Fibrous Dysplasia Foundation.
Visit www.trikidstry.com to register or to get information about volunteering.
HOW YOU CAN HELP
Individual Donations include memberships and memorial gifts. Visit the DONATIONS button on the Top Menu to contribute via Credit card, Paypal, Google or to print a form that can be mailed with a check: https://www.fibrousdysplasia.org/donations.php
Corporate Donors – have underwritten portions of our conferences, assisting in making them affordable to members, helped us duplicate brochures and DVDs, and assisted with the development of our website. Visit the CONTACT US button on the Top Menu to offer your financial or in-kind support: https://www.fibrousdysplasia.org/index.php?page=9
Fundraisers – A number of individuals have raised funds from a spectrum of individuals. Their efforts include dinners, parties, races, and fundraising letters. We welcome your participation in this effort. See the FD FOUNDATION FUND RAISING GUIDE 2009 for ideas.
