WELCOME TO THE FIBROUS DYSPLASIA FOUNDATION!
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Fibrous Dysplasia Foundation, Inc. (The FD Foundation) is a worldwide, not-for-profit, charitable organization of volunteers whose mission is to provide information, advocacy and support for patients, medical professionals and the general public and promote research for diagnosis, treatment and a cure for Fibrous Dysplasia (FD) and McCune-Albright's Syndrome (MAS), Cherubism and related diseases. Our goal is to improve the quality of life for affected individuals and their families.
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STAY INFORMED!
Go to the Foundation News side bar or click on links to pages about the: 2010 Scientific Meeting, Patient Conferences, Advocacy, Fundraising and our development of a Registry/Biorepository and investment in research!
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Make a donation!
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EDUCATION: The FD Foundation provides a variety of sources of information about FD,
MAS and Cherubism, to further awareness of these diseases:
Fibrous Dysplasia Overview: https://www.fibrousdysplasia.org/index.php?page=23
McCune Albright Syndrome Overview: https://www.fibrousdysplasia.org/index.php?page=24
Diagnosis and Treatment of FD & MAS: https://www.fibrousdysplasia.org/
index.php?page=35
Cherubism Overview: https://www.fibrousdysplasia.org/index.php?page=25
FAQ About FD: https://www.fibrousdysplasia.org/index.php?page=16
FAQ About FD Treatment: https://www.fibrousdysplasia.org/index.php?page=17
Living with FD, MAS and Cherubism: https://www.fibrousdysplasia.org/
index.php?page=44
FD FOUNDATION BROCHURE
FD FOUNDATION BROCHURE - SPANISH
The FD Foundation hosts conferences for patients and caregivers/advocates where medical practitioners present the cutting edge of research and clinical practice concerning FD and MAS in a format understandable by the general public.
Conferences: https://www.fibrousdysplasia.org/index.php?page=26
Presentation Downloads: https://www.fibrousdysplasia.org/index.php?page=27
SUPPORT: The FD Foundation offers a community of people familiar with FD, MAS
and Cherubism who are available to patients, their friends and families and medical
professionals through email. The regular meetings also provide a chance for the
geographically dispersed community to come together.
Become a member: https://www.fibrousdysplasia.org/index.php?page=9
Participate in the on-line support group: http://groups.google.com/group/
fdsoldailyemail?lnk=
Physician Referral Database: https://www.fibrousdysplasia.org/referrals.php
Make a donation: https://www.fibrousdysplasia.org/donations.php
RESEARCH: The FD Foundation promotes awareness among bone specialists and other researchers about the need for research into FD/MAS and Cherubism. The FD Foundation assists researchers on FD/MAS and Cherubism in finding participants for on-going research and will also provide research support when funds are available.
Research Opportunities: https://www.fibrousdysplasia.org/index.php?page=36
See also our LIBRARY OF ARTICLES
ADVOCACY: The FD Foundation advocates fundraising on an individual, corporate and
government level in order to promote research into diagnoses, treatments and, ultimately, a
cure for FD/MAS.
Advocacy: https://www.fibrousdysplasia.org/index.php?page=39
Fundraising: https://www.fibrousdysplasia.org/index.php?page=38
Please report problems with this website to info@fibrousdysplasia.org
